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Qualifying for SSDI with a rare disease

On Behalf of | Feb 26, 2017 | Social Security Disability

By definition, a rare disease affects fewer than 200,000 people in the United States. But when you add up all the rare diseases afflicting Americans, the total comes to 25 to 30 million people in our country, or about 1 out of every 12 people.

There are several thousand rare diseases at present, each with a distinct set of causes, symptoms and problems for those with the conditions. In addition to the physical and emotional difficulties that accompany the diseases, those who are prevented from working are presented with financial troubles to deal with as well.

According to Rare Disease Report (an online publication catering to the community of people with rare diseases), Social Security Disability benefits are an option for many people with rare diseases.

The publication notes that it is important for applicants to document conditions that make them “totally and permanently disabled” so that they might qualify for and receive monthly assistance.

The process of SSDI application review begins with the Social Security Administration going to its so-called Blue Book to check on the applicant’s disorder and qualifying conditions. RDR uses fibrous dysplasia (FD) as an illustration of a rare disease found in the Blue Book.

The disease results in abnormal growths on one or more bones. To qualify for SSDI with FD, a person must have “gross anatomical deformity” of at least one joint, as well as medical evidence of pain or damage as a result.

To apply for SSDI, a person must properly complete application forms and provide documentation of their conditions. An experienced Charlotte attorney can help you appeal a denial of benefits.


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